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Manuscript
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Abstract
Abstract
Manuscript
Pruritus in primary biliary cholangitis is under-recorded in patient medical records
BMJ Open Gastroenterology
|
March 29, 2024
Manuscript
Major clinical events and healthcare resource use among patients with long-chain fatty acid oxidation disorders in the United States: Results from LC-FAOD Odyssey program
Molecular Genetics and Metabolism
|
May 1, 2024
Research Poster
Glucocorticoid Treatment Patterns in Pediatric and Adult Patients with Classic Congenital Adrenal Hyperplasia: Results from the CAHtalog Registry
PES 2024
|
May 3, 2024
Research Poster
Quantifying the Effectiveness of a RWD Quality Framework; A Case Study Using Paroxysmal Nocturnal Hemoglobinuria (PNH)
ISPOR 2024
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May 10, 2024
Research Poster
Baseline Characterization of Patient-Reported Disease Burden in a Virtual, Longitudinal Cohort of Myasthenia Gravis
ISPOR 2024
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May 10, 2024
Research Poster
Real-World Clinical Characteristics and Disease Management of Immunoglobulin A Nephropathy Patients across the United States
ISPOR 2024
|
May 10, 2024
Research Poster
EVOLVE: An Ambispective, Patient-Centered, Real-World Early-Stage Breast Cancer Registry in the United States
San Antonio Breast Cancer Symposium
|
December 8, 2023
Research Poster
Methods of Estimating Annualized Bleed Rates from Medical Records Among Patients with Hemophilia A
ISPOR EU 2023
|
November 14, 2023
Research Poster
A Fully Enrolled, Novel, Patient-Centred Real-World Evidence Study Designed to Better Understand Active and Nonactive Progressive Multiple Sclerosis Using Health Records in the United States
ECTRIMS 2023
|
October 13, 2023
White Paper
A Guide to Navigating Today’s Real World Data Landscape
A Guide to Navigating Today’s Real World Data Landscape
|
October 30, 2023
Research Poster
Characterizing patient care before and after a myasthenia gravis diagnosis
ICPE 2023
|
August 27, 2023
Research Poster
Characteristics, Disease Burden, and Preliminary Outcomes of Patients with Myasthenia Gravis in Real-World Treatment Settings Across the United States
ICPE 2023
|
August 25, 2023
Research Poster
Alignment of Prophylactic Medication Data in Medical Records and Patient-Reported Surveys Among Patients with Hemophilia A
The Annual Bleeding Disorders Conference
|
August 17, 2023
Research Poster
EMPOWER AD: A NOVEL, PATIENT-CENTRIC, LONGITUDINAL, CLINICAL DATASET IN THE UNITED STATES
AD/PD 2023
|
March 28, 2023
Research Poster
Exploring The Path To Diagnosis For Patients With Myasthenia Gravis Using Real-World Data
ISPOR 2023
|
May 10, 2023
Research Poster
Utilization of Diagnostic Testing in Alzheimer’s Patients
ISPOR 2023
|
May 9, 2023
Research Poster
Disease Modifying Therapy (DMT) Utilization and Health Care Resource Utilization (HCRU) Among Adults with Multiple Sclerosis (MS) in a United States-Based Real-World Cohort
ISPOR 2023
|
May 8, 2023
Research Poster
Common Documentation Errors in the Electronic Health Records of Persons with Hemophilia B
HTRS 2023 Scientific Symposium
|
March 12, 2023
Research Poster
Treatment burden and unmet needs in hemophilia patients with inhibitors: Results from a real-world observational study in the United States
HTRS 2023 Scientific Symposium
|
March 12, 2023
Abstract
Characteristics and Bleeding Behavior of Females with Mild Hemophilia A: Longitudinal Study from PicnicHealth Hemophilia A Database
ASH Annual Meeting and Exposition
|
December 10, 2022
Research Poster
Characteristics and Healthcare Utilization of Patients with Mild or Moderate Hemophilia A in the US - An Analysis from the PicnicHealth Cohort
ASH Annual Meeting and Exposition
|
December 10, 2022
Abstract
Multiyear, Real-World, Retrospective Cohort Study Using a Patient-Centric Approach to Evaluate the Burden of Hemophilia B in the United States
ASH Annual Meeting & Exposition
|
November 15, 2022
Research Poster
Characterizing patients with pruritus and primary biliary cholangitis (PBC) in the PicnicHealth PBC cohort; contrasting medical record-documented pruritus with patient-reported pruritus from the PBC-40
AASLD The Liver Meeting 2022
|
November 1, 2022
Research Poster
Characterizing primary biliary cholangitis (PBC) patients in the real world: demographics and treatment characteristics of the PicnicHealth PBC cohort
AASLD The Liver Meeting 2022
|
November 1, 2022
Research Poster
Identifying Flares in Lupus Nephritis Patients by Combining Structured and Unstructured Medical Records with Lab Data
ISPOR EU 2022
|
November 1, 2022
Research Poster
A Novel, Patient-Centred Real-World Evidence Study Designed to Better Understand Active and Nonactive Progressive Multiple Sclerosis Using Health Records in the United States
ECTRIMS 2022
|
October 1, 2022
Research Poster
COVID-19 Vaccination Patterns and Outcomes Among Persons With Multiple Sclerosis in the FlywheelMS Cohort
ECTRIMS 2022
|
October 1, 2022
Research Poster
Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data
EHA 2022 Hybrid Congress
|
June 1, 2022
Abstract
Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data
EHA 2022 Hybrid Congress
|
June 1, 2022
Infographic
Lupus Nephritis Cohort Infographic
|
August 24, 2022
Manuscript
Generating real-world data from health records: design of a patient-centric study in multiple sclerosis using a commercial health records platform
JAMIA Open
|
January 17, 2022
Research Poster
Introduction to Odyssey: Real-world rare disease data collection program from digitized health records for patients with long-chain fatty acid oxidation disorders (LC-FAOD) in the United States
INFORM Annual Meeting
|
October 27, 2021
Abstract
Characterizing mild and moderate hemophilia A patients in the real world: a patient-centric approach
ASH Annual Meeting & Exposition
|
December 3, 2021
Abstract
A novel methodology for building longitudinal, patient-centric real world datasets in hemophilia A
ASH Annual Meeting & Exposition
|
December 3, 2021
Abstract
Addition of narrative text abstraction to ICD-based abstraction significantly improves identification of lupus nephritis in real-world data
ACR Convergence 2021
|
November 6, 2021
Abstract
COMMODORE Cohort: A real-world, non-interventional cohort study to evaluate the safety and effectiveness of C5 inhibitors in patients with PNH
Blood (2020) 136 (Supplement 1): 31-32
|
November 5, 2020
Abstract
The Neat-HER virtual registry: Results on HER2+ breast cancer patients receiving neratinib as extended adjuvant therapy
San Antonio Breast Cancer Symposium
|
December 9, 2020
Research Poster
FlywheelMS: Stratification of anxiety and depression by MS subtype as captured in digitized health records
ACTRIMS 2021 Virtual Forum
|
February 25, 2021
Research Poster
Collecting real-world MRI in multiple sclerosis: preliminary results from FlywheelMS
MSVirtual 2020
|
September 11, 2020
Abstract
HD Constellation: A novel patient-centered approach to enriching clinical datasets by combining medical record chart review and Enroll-HD
MDS Virtual Congress 2020
|
September 12, 2020
Research Poster
FlywheelMS: The prevalence of multiple sclerosis subtypes in digitized health records
MSVirtual 2020
|
September 11, 2020
Research Poster
A patient-centric approach to improve the understanding of sickle cell disease using real-world data
ASH Annual Meeting & Exposition
|
December 5, 2020
Research Poster
FlywheelMS: A Novel, patient-centered study to better understand multiple sclerosis using electronic health records and other real-world data sources
ECTRIMS Congress
|
September 12, 2019
White Paper
Why PicnicHealth data? Comparing PicnicHealth data with existing research databases
PicnicHealth Team
|
April 1, 2021
White Paper
How PicnicHealth generates real world data from medical records
PicnicHealth Team
|
April 1, 2021
Infographic
Shine the Light on Sickle Cell
PicnicHealth Team
|
June 18, 2021
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